Cambridge, Mass., December 08, 2008
“PatientsLikeMe, the leading online community for patients with life-changing conditions, announces the launch of its newest community for people with fibromyalgia. Patients can chart the course of their disease by answering simple questions about their experience and adding their treatments and symptoms to their profile. All profiles are shared within the community, so patients can find others like them and learn from each other.
“‘There is no question fibromyalgia patients are experiencing significant debilitating symptoms,’ says co-founder James Heywood. ‘We have the potential to understand this disease in a way that helps advance its treatment.’
“As part of its launch this week, PatientsLikeMe has a blog series, ‘Voices of Fibromyalgia,’ devoted to the disease from the patient perspective. Tomorrow’s blog features a Q&A with triathlete and fibromyalgia patient Minnie Lee. ‘PatientsLikeMe has massive potential to be a crucial resource for fibromyalgia patients by having every possible symptom and treatment laid out in one central source,’ says Lee.
“PatientsLikeMe, which launched its first community for patients with ALS (Lou Gehrig’s Disease) in 2006, is rapidly expanding. In 2008 alone, PatientsLikeMe has launched customized communities for people with HIV, depression and bipolar (and other mood-related conditions), a series of orphan diseases (PSP, MSA, and Devic’s) and fibromyalgia. All communities are free to join.
PatientsLikeMe is a CommerceNet portfolio company.